Tuesday, October 27, 2009

Hysterectomy and Scopes

I was called on Friday to let me know that my surgery has been booked. Hysterectomy. I have, on top of EVERYTHING else, this rare condition called Pelvic Congestive Syndrome. Which basically means I have varicose veins, pooling blood, inside my uterus. My OBY/GYN tells me it's a matter of time before they rupture and hemorrhage. He's been telling me this for 5 years now. I've been trying to 'fix' this in other ways...to no avail. I'm basically in chronic pain in my lower ab region, all the time. Menstruation is hell. But, like all women, I get through it. There is also some thought that perhaps, just perhaps, I might have mast cells lurking in my uterus. Unusual, but they are showing up all over the place. Today, I just learned of a woman who had mast cells in her skull. After feeling ill for a while, and complaining of severe headaches for over a year, they relunctantly did an MRI and ta dah!!! A mass. When they went in to remove it, it turned out to be a mass of mast cells hanging out in bone marrow in her skull. Her bmb in her hip had showed nothing. So...ya know, crazy shit happens.

So, surgery is slated for Nov. 12.th. Apparently I can expect a 6 week, recovery period. eeek. I'm not very good at sitting still. Apparently, it can REALLY mess you up if you don't rest. Bowels and bladders end up sitting in the wrong places. Things like that...

So pre-op for this is Nov. 2nd, next Monday, in the afternoon.

Today I was called by the surgeon's office, who'll be doing my gut scopes (in response to my calling my GP's office to see where we were at with this because I can't imagine having a gut scope on top of an hysterectomy!) I see him on Monday Nov. 2nd too, in the morning. Scope will be scheduled for sometime between Monday and Nov. 12. They want to get this done before the hysterectomy.

Scoping will be both top and bottom (oh joy....) and they will be taking biopsies along the entire tracts for mast cells, checking for crohns, colittis and celiac scarring.

I hope ALL of this reaps some reprieve, some answers and some relief.

WHAT the hell is this like for my kids to have a 'sick Mom/Mum'?!?!?!? This is no way to be a mother.

It was my birthday yesterday. I turned 40. Yesterday my youngest daughter hugged me and nose to nose she smilingly said to me, "Mommy, for your birthday wish, you should wish that there is no such thing as Mastocytosis. That's what I wish for." Then she added that there should be no latex in the world either.

Yes, little lady, that's exactly what I wish for.


Anonymous said...


Faith Berry said...

Happy (belated birthday! May all your wishes come true. Wish you the best with your upcoming procedures and surgery. When I had fibroids removed, it was indeed a 6-8 week recovery. Faith

Gypsy Princessa said...

I wish it for all of us too!

Thanks Faith. You rock! Hope removing them gave you some peace. OMG...WHAT am I going to do for 6 weeks?!??!?!?

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