First, may I please ask that you continue to keep Dawn and Gavin in your thoughts, hearts, minds and prayers. Gavin's big sister, Chelsea is having an understandably hard time with her Mom being at the hospital this past two weeks and wants them all to be home together. Dawn...I just want to wrap Dawn and her family in a big love blanket, take away all this health crap and enjoy a 'normal' day together...one day....
Also, one of the most amazing people I know and love is coming to terms with her father's suicide/death right now and, while I can't possibly know what it's like to lose my parents (her Mom died of cancer a scant couple of years ago...), I want to ease her pain and suffering and loss. Drea, I love you. xoxooxoxo
It's really odd when you become your own administrator. Two weeks ago I saw Dr. Vadas in Toronto, and he says that he is not in receipt of the abnormal tryptase/24 hr catecholamine (elevated levels of histimine) results that were done in Winnipeg by Dr. Hicks's Immunology office. Weird. All my other stuff had been forwarded. It has taken me two weeks to get a hold of an actual person...and they wouldn't forwarded those results to Dr. Vadas because I have to sign a medical release form, apparently. I've signed one for Dr. Fischer's Immunology office in Barrie...so I asked if they could send it there. I called Jane, Dr. Fischer's INCREDIBLE administrator, and she said she'd watch for it, and send it on immediately to Dr. Vadas. Once again, she had my file on her desk. She says I'm a 'special' patient. We joked, NOT the kind of 'special' a person really wants to be. So...FINALLY, that should be sent on...
I see Dr. Vadas again tomorrow. I've had one Epi-breakthrough reaction in the past two weeks, and days of facial and throat swelling. This subsided yesterday FINALLY. I feel almost human today...which is amazing!!!!
Bone marrow biopsy with another Dr. Hicks in Toronto, at St. Michael's tomorrow morning. This time for the c-kit mutation. No-one has told me whether I need to be on or off meds for it; no-one has told me anything except they know about my severe latex allergy and to show up. I'll need to tell them I can't have lidocaine or xylocaine or painkillers...as I go into shock. Mind you, I guess if that happens, I'm in the right place???? Ugh, NOT looking forward to this. I have managed, pretty much to put it out of my mind. But, it's looming, getting closer....I don't ask for people to think of me very often, but please, if you could tomorrow morning...that would be grand. I'm scared. This test hurts soooooooooooooooooo bad; and is super unpleasant (excrutiating) and...I wouldn't wish this on anyone.
Also, one of the most amazing people I know and love is coming to terms with her father's suicide/death right now and, while I can't possibly know what it's like to lose my parents (her Mom died of cancer a scant couple of years ago...), I want to ease her pain and suffering and loss. Drea, I love you. xoxooxoxo
It's really odd when you become your own administrator. Two weeks ago I saw Dr. Vadas in Toronto, and he says that he is not in receipt of the abnormal tryptase/24 hr catecholamine (elevated levels of histimine) results that were done in Winnipeg by Dr. Hicks's Immunology office. Weird. All my other stuff had been forwarded. It has taken me two weeks to get a hold of an actual person...and they wouldn't forwarded those results to Dr. Vadas because I have to sign a medical release form, apparently. I've signed one for Dr. Fischer's Immunology office in Barrie...so I asked if they could send it there. I called Jane, Dr. Fischer's INCREDIBLE administrator, and she said she'd watch for it, and send it on immediately to Dr. Vadas. Once again, she had my file on her desk. She says I'm a 'special' patient. We joked, NOT the kind of 'special' a person really wants to be. So...FINALLY, that should be sent on...
I see Dr. Vadas again tomorrow. I've had one Epi-breakthrough reaction in the past two weeks, and days of facial and throat swelling. This subsided yesterday FINALLY. I feel almost human today...which is amazing!!!!
Bone marrow biopsy with another Dr. Hicks in Toronto, at St. Michael's tomorrow morning. This time for the c-kit mutation. No-one has told me whether I need to be on or off meds for it; no-one has told me anything except they know about my severe latex allergy and to show up. I'll need to tell them I can't have lidocaine or xylocaine or painkillers...as I go into shock. Mind you, I guess if that happens, I'm in the right place???? Ugh, NOT looking forward to this. I have managed, pretty much to put it out of my mind. But, it's looming, getting closer....I don't ask for people to think of me very often, but please, if you could tomorrow morning...that would be grand. I'm scared. This test hurts soooooooooooooooooo bad; and is super unpleasant (excrutiating) and...I wouldn't wish this on anyone.
2 comments:
You will be in my thoughts and prayers (along with your friends). When I had my BMB I was on all my regular meds.
You are in the thoughts of all of us at the forum, and you are in my prayers.
Lafer
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