In the words of Kool & the Gang...."Celebrate"

Can I be excited?

It's been just over a month since I had my last anaphylactic attack. That's the first time in over 15 months WITHOUT walking that line of breathing...or not; swallowing...or not; inhaling...or not. I can't help but be ecstatic about that!!!!!! Over a month...omg.

I don't even want to go on about how not well I'm feeling right this moment. It's been over a month since a reaction!!!! This is NOT inconsequential.

Man, it'll be nice when we finally unlock the gene code or the etiology of this disease.

Dr. Vadas, thank you.

Pain

Another night, and it looks like it'll be another battle to sleep and get comfortable. This leg and knee pain is unflaming real. I should've known. Two days of headaches preceding it. Fuck, shoot me now.

I have a bottle of percoset, loads left over from recovering from knee surgery. IF you can believe it, it hurt less than this does. Ergo, the big bottle of pills left over. I used some, but not the amount in the bottle. I am very fortunate and thankful for having them now.

I know Advil (TM) Migraine Ibuprofin would help this pain. But for us in Masto world, it's a GIANT trigger. Poof, off into the land of anaphylaxis; itching; pain; gut turmoil; inability to control one's own body temperature; urge to pee and then not having to go; vomit and diahrrea, we spin...

Ok, writing about it, isn't even helping. Please, someone chop my legs off...ok, be careful what you wish for...someone please help my pain go away without leaving me legless or unable to walk (walking is such good therapy for my isolated Self.)

Hope you're having a better night. Really.

It's Been A Good Week, overall

Aside from my youngest daughter suffering an unbreakable fever this week (for 4 days in total), it's been a great week. I've had very little pain, marginal itching, mostly happy airway, pseudo-content gastrointestinal system and, have managed to get some sleep.

Is the Ketotifen helping?

Old Friends

I wasn't sure about this Facebook thing, but you know what? Today, I connected with my childhood friends. Perhaps this doesn't sound like such a big deal but when you've moved as much as I have, lived in places for a few years, forged friendships and then had to move on...and you haven't grown up in the same place, with that comfortable sense of belonging that most people who have grown up the in the same or nearby place have, it's an incredible feeling to REALLY reconnect with people that have been important to you.

It sort of feels like like my life hasn't been so much of a dream, so much as an actual journey. And, I belong.

Sweet Sleep

Up to 4 pills of Ketotifen and...finally sleep arrived. The worst was at 3 pills. That seems to have been when I couldn't sleep at all.

I slept a sound 12 hours last night, and feel so much better today.

And, I'm feeling better, overall today. Wee hooOOOOOO!!!!!!

Just as well, we're celebrating my fatherinlaw's and my daughter's birthday this afternoon.